Monday, August 31, 2009

God is Bigger than DMD! a RE-POST

My nephew B is a MESS! in every sense of the word. he is extremely active and full of life. he is 4. when he was 2 1/2 he was diagnosed with Duchenne Muscular Dystrophy. DMD is the most common fatal genetic disorder diagnosed in childhood affecting 1 in every 3,500 live male births. there is no cure for DMD... NOT YET! ok now after telling you the "FACTS" i want to tell you more about B, my sister and her family.

when they found out about B they were devestated. and understandibly so. we all have plans for our children. they will go to school, have relationships, play sports, maybe even being the BEST at something, get married, have kids, and then they will have their own kids that will do remarkable things! life will happen for our children and we PRAY that they don't do drugs, hang with the wrong crowd,kill somebody or most importantly...reject GOD. but, for heaven sake we NEVER expect that their will be something medically wrong with our precious children.

my sister and brother in law are two of the most awesome people you will ever meet. they LOVE the Lord Jesus, eachother, and their three children. they are God-fearing, tax paying, "good people" i mean COME ON LORD, how can something like this happen to them? what about those people over there that don't tithe and don't spend TIME with their kids? OR THOSE people who party all the time instead of going to wednesday night worship and heaven forbid they EVER go to church? shouldn't my sister and my brother in law deserve to have healthy children that will go on to do GREAT things? the Bible says no, actually. none of those "good acts" matter. in fact all of our good works are as filthy rags before the Lord. WHAT:?????>?<

"There is no one righteous, not even one; there is no one who understands, no one who seeks God. ALL have turned away, they have together become worthless; there is no one who does good, not even one." Rom. 3:10-12

as christians we often think of our own faith and self-righteousness as a ticket to a pain free life. If we are faithful enough that God will give us what we want. therefore we will live a healthy and wealthy life! wow. that sounds like good news. i could totally get on that bandwagon. but the TRUTH is simply NOT true.

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". Jer. 29:11

these words in Jeremiah are a wonderful thing. but sometimes christians take them to mean that our hope and future and prosperity will be here on earth. but the ultimate hope and future is in heaven. the knowledge of our Lord as our savior is our HOPE and FUTURE!!

How does this relate to B, my sister and brother in law? it actually means EVERYTHING.

My sister, although she HURTS for her child, knows where her hope lies. and there is TREMENDOUS hope in the fact that God knows the plans he has for B! my sister and brother in law know that God's plans trump their own. while they pray for a cure for DMD, they do not sit idle, but fight the battle with their child. they have a fabulous doctor and B is on daily steroid treatment for strength. he will never build new muscle, so they have to be careful about depleting the muscles that he already has. the depletion of muscles is what causes the eventual wheelchair aspect. we are praying that the research that is being done RIGHT NOW for DMD will bring treatment in a few years for B. this is our prayer!

B is a little pistol. he is a fighter. he is hilarious. he is my youngest child's best friend. he loves playing with little cars on the floor, he loves his dogs and cat, he loves playing with his neighbors and chasing things! to look at B you would not know that he has this illness. he is simply a normal little boy. he enjoys every normal activity that he can do. We love this little boy so much! we know that God is not bound by medical facts or stats. we are praying that he be healed of this disease.

thank you for reading B's story and i ask for your prayers for him! pray for research and click on to the Parent Project website. you can help by purchasing some merchandise and also becoming more aware of the facts of the disease. there are car magnets, a children's book, christmas cards and much more. thank you so much.

upon reading this post to my sister she reminded me that at first she was quick to ask, "why me?" when she realized the real question should be, "why NOT me?" none of us are deserving of anything, we are all sinners. ONLY because Jesus died for us do we recieve GRACE. God will do mighty things through B. we know this is true already.


  1. Liz, actually you ARE a good writer. It's from the heart and not contrived; you are talented in many ways and your strength from being a Believer is projected in all your endeavors, including Beau's story.And what a story! Since I know the parents,I get the full picture of the wonderful gift to them, a little boy named Beau.......

  2. LOVED reading this about your sister and family and especially your remarkable nephew. Very inspiring. And humbling. And many, many more things! Thanks for sharing.

  3. and what about the Run for our Sons..?!! The big race day in Crestline, the 5k that's going to rock bham!!?? April 10th baby!